Nchifukwa chiyani izi zachitika kwa ine?
Kuwunikira kumatsimikiziridwa: madokotala mpaka mapeto sakudziwa, kumene matenda amachotsedwa. Ndipo simukudziwa momwe mungatengere ziwalo zambiri, mankhwala ena amafunikira pa izi. Ndipo chinthu chachikulu ndi momwe angachitire. Makampani ambiri a zachipatala adakonzedwa, ndondomeko zothandizira kumwa mankhwala, koma nthawi zonse kudalira "malaya oyera", wodwalayo amavomereza kudziyesa yekha.
Mwa iye mosasamala 34 Riquel ankawoneka ngati mawonekedwe osasamala. Katswiri wa zamaganizo ndi mtolankhani, anali mkazi wabwino kwambiri, analemba nkhani za ana, anala ana atatu ndipo amayembekezera kubadwa kwa mwana wachinayi. Rivil anauzidwa kuti asungidwe, koma chinachake chinalakwika pochita opaleshoni, kutuluka mwazi kunawululidwa, mkazi yemwe anali kuvutika anali atataya magazi ambiri. Chochuluka kwambiri kuti m'mabanki a magazi sichinali chokwanira, ankayenera kulira pakati pa oyendetsa minda (yomwe inali ku Donetsk) kuti apereke magazi kwa mayi wamng'ono. Azimayiwo anagonjera. Ndipo, mwachiwonekere, limodzi ndi magazi a munthu wina, thupi limakhala ndi ubongo. Mayi ndi mwana adakhalabe amoyo, koma kwa Rivil, anali moyo wosiyana kwambiri ndi matenda a multiple sclerosis ndi gulu loyamba la olumala.
"Poyamba zinadabwitsa," adatero Rivil. - Sindinathe kumvetsa chifukwa chake izi zinandichitikira - choncho ndikukonda moyo komanso ndikuthandiza. Ndinkafunafuna zifukwa, koma sindinapeze matenda osiyanasiyana, sindinapeze njira zina zothandizira. Ndasanthula malingaliro anga onse ndi zochita zanga. Ndinazindikira kuti ndili ndi zaka 34 sindinadziwe zomwe ndingakwanitse, ndinadalira ndikuchita zomwe anthu ena amafunikira, osati ine. Sindinkakondedwa ndipo sindinkafuna. Ndinabwera ku lingaliro la mtima wanga wankhanza - chifukwa cha maganizo chifukwa cha multiple sclerosis. Ine, ndekha, sindinkakonda mwamuna wanga, koma ndimamuopa. Ndipo iye anadziyendetsa yekha mu ngodya. Zomwe zimayambitsa matenda alionse zimanyozedwa kwambiri, kusowa chimwemwe, mahomoni achimwemwe, kukhutira. Matendawa anandisintha kwambiri. "
Rivil adati amalemekeza matenda ake. Amapha munthu, kapena amamupangitsa kukhala wamphamvu mwamphamvu. Chinthu chachiwiri ndichimodzimodzinso, multiple sclerosis sichikuchiritsidwa ndi pang'onopang'ono, koma ndithudi imatembenuza munthu kukhala chiwonongeko. "Ndili ndi matendawa, mumayenda ngati mtambo," akupitiriza mnzanga. - Mabala otchedwa sclerotic amawononga ziwalo za mitsempha, amawoneka kuti alibe. Munthu samakhala wosamala, sawona, samva. Mukufuna kupita, koma miyendo yanu simukudziwa. Inu mukufuna kutenga chinachake, koma musati mutenge manja anu. M'mawa wamasewerowo, sindinathenso kugwira cholembera kapena singano. Zala zanga sizinandimvere, koma miyendo yanga inakana. "
Matendawa anali atadutsa zaka zisanu za mankhwala opangira mahomoni m'zipatala chifukwa cha matenda ambirimbiri a matenda opatsirana. Chiwindi cha Rivil chakhala chodziwika kale ndi zotsatira za prednisolone ndi zida zina zolemetsa za pharmacies. Masomphenya adagwa, kulankhula kunasinthasintha, kunasunthika kwambiri pamitengo. "Mankhwala anandipweteka kwambiri. Ndinazindikira kuti kuchokera kumbali iyi sindingathe kuyembekezera thandizo, "adatero Rivil. - Ndinamva kuti akuyesa pa ine. Kuchokera apo, zaka 16 zadutsa, koma palibe chomwe chatsintha pakuchulukitsidwa kwa multiple sclerosis. Ndikukumana ndi achinyamata omwe amanditembenukira kuti andithandize, chimodzimodzi: mankhwala omwewo ndi njira zomwezo. Ndipo chomaliza: njinga ya olumala, bedi, n_ndipo palibe munthu. Ndinalowa mu ukapolo wamankhwala, ndipo, pozindikira izi, ndinayamba kufunafuna njira ina. "
Malinga ndi mankhwala ovomerezeka, Rivile anachita zinthu zopusa. Tsiku lililonse iye ankaganiza momwe gulu la asilikali olimba mtima omwe anali ndi mapampu apadera anali kuyeretsa chiwindi chake, akuyamwa mabala a sclerotic. Akulankhula ndi thupi lake, adalimbikitsa odwala (ali openga kapena openga) kukhala pamodzi ndi wathanzi. Zinali zovuta kwambiri kuposa kumwa mapiritsi. Iye anadzifanizira yekha pa tebulo logwira ntchito kumwamba. Kufunsira kwa madokotala opanga opaleshoni ya Angelfish anasankha kusintha chiwindi cha Rivil osati chonse, koma m'madera ena. Ndipo adangoganizira za momwe mzere wa chiwombankhanga umasinthira. Patatha zaka zingapo adatumizidwa ku ultrasound, dokotalayo sanakhulupirire kuti chiwindicho chinali champhamvu. Mu malingaliro ake, Rivil anasambitsidwa pansi pa mitsinje ya mathithi a kumwamba, omwe anatsuka matendawo kuchokera ku selo iliyonse. Ankavutika ndi multiple sclerosis ndi kuganiza.
Kukambirana ndi baracabala
Rivil anati: "Ndinkakhulupirira mphamvu yanga, kuti thupi langa ndi makina okongola kwambiri amene ankatopa ndi mafuta ovuta. - Ndipo ndinayamba kugwira ntchito ndi thupi langa ndekha. Nthaŵi zonse ndimadzuka, ndikulankhulana ndi ziwalo zanga zonse, zomwe, mwa njira, ndikuzichita lero. Kodi machitidwe a m'mawa a malingaliro ake ndi ziwalo zake. Pamene mukudwala, simuyenera kuganizira mozama za inu nokha, komabe muzidzikonda nokha. Ndinayambitsa diary ya ntchito zabwino, ndipo ndinayamba kuyang'ana omwe ali ofooka kuposa ine, amene ndingathandize. Zingano zanga zinandimverabe zoipa, koma ndinapanga zidutswa ziwiri zoyambirira ndikupita nawo kugawikana kwa ana a Kiev. Pambuyo pake maulendowa adalowa m'dongosolo. Iye analankhula ndi ana, adafunsa za thanzi lake, kumwetulira, kuimba nyimbo nawo, kusonyeza machitidwe, kulemba nkhani. Mmodzi wa iwo ndi za baracabal ya khansara yoopsa, alendo ochokera kudziko lina limene aliyense amawopa, koma ali ndi mantha kwambiri. Ndinadzithandiza, kuthandiza ena. "
Rivil sanalole kuti okondedwa ake azidandaula, iye anasiya kudziyesa yekha wodwala. Ndipo izi, iye anati, anafulumira kupuma ndi mwamuna wake. Iye sanalole ufulu wamkati womwe iye anali nawo. Iwo akusudzulana. Kwa zaka zitatu iye ankadzichitira yekha, koma nthawi yomweyo, ngati kuti sanadzizindikire yekha. "Nditazindikira kuti ndikhoza kuyenda popanda ndodo," adatero Rivil. - Kwa kanthawi ndinayenda ndi zokopa, ndipo ndinamva kuti akumasokoneza. Ine ndinagwidwa ndi mkazi. Anati: "Ndiwe wokongola kwambiri, wachinyamata, n'chifukwa chiyani ukusowa nkhuni?" Ndinaganiza kuti: "Ndipo, chifukwa chiyani?" Anzanga anandiitana kuti ndipiteko, ndakhala ndikuyenda bwino, koma ndinkangokhala wolimba mapazi. Ndinkachita manyazi kuvomereza kuti sindingathe kusewera. Tinapeza njinga, ndinakhala pansi, ndikuika mapazi anga pamapazi ndikuyenda. Posakhalitsa, kukhudzidwa kunabwerera ku mapazi anga. Mfundo yaikulu ya chigonjetso pa matendawa sikuti ikhale pampando wachifumu, mwinamwake idzagonjetsa gawo lanu lonse, idzafuna nsembe ndi kupembedza. "
Chotsatiracho, chomwe chidatuluka ndi phazi, chinachotsa Rivil ku matenda a multiple sclerosis, chinali moyo wokha, chilakolako chochita zabwino ndi zothandiza. Anayamba ndi masewera achidole odwala khansa, omwe anali ochita masewerawa. Iye analemba nthano zabwino, pomwe anthu ochita zamatsenga adagonjetsa matenda awo, kenako anawaika ndi odwala ang'onoang'ono. Moyo wa chipatala wa ana omwe akudwala mankhwala a chemotherapy, sakuwala ndi zochitika zosangalatsa ndi zosiyanasiyana. Rivil ya Fairy ndi machitidwe ake anachotsa ana kunja kwa kupondereza. Anagwira ntchito pamodzi ndi aliyense pamodzi ndi wina aliyense, ndipo zotsatirazo zinali zodabwitsa.
"Ndinali ndi mtsikana wina wa zaka 12 yemwe ankagwira ntchito kawiri," anatero mnzanga. "Anali ndi chifuwa chachikulu mu msana wake." Kunja kwamtundu wotereku amaonedwa kuti ndi oopsa, osagwiritsidwa ntchito. Chotupacho chikukula mpaka, pambuyo pake, munthuyo akuphwanya. Pamene ndinayamba kuphunzira ndi wodwala wanga, adali ndi ziwalo zowonongeka kale. Tinagwira ntchito mu bafa, tinakongoletsa ndi zokongoletsera, tinakonza makandulo. Ndipo maso awo atsekedwa iwo ankawonekeratu mfundo za chotupacho ndi makina ochotsa chipale chofewa omwe anasonkhanitsa ndi kuwachotsa. Kenaka adayambanso kusamba, ndipo mtsikanayo anaganiza momwe mvula yatsopano ya May ingakhalire kutali zonse za matendawa. Pamene adanena kuti adamva kununkhira kwa maluwa m'munda, madzi adatsekedwa. Pambuyo pa miyezi itatu yophunzira, kujambula kwa MRI kunasonyeza kuti chotupacho chinali chitatsimikizika. Madokotala anadabwa. Kenaka banja ili linasamukira ku Canada. Sitinawonane wina ndi mnzake kwa zaka zisanu. Posachedwapa adayitana - wodwala wanga ali ndi dongosolo langwiro. "
Chilakolako cha moyo
Rivil adati nthawi zambiri anthu safuna kubwezeretsa. Anthu makumi asanu ndi anayi pa zana alionse omwe ali ndi matenda aakulu monga kukhala muchisomo cha chifundo cha munthu wawo. Rivil akukumbukira kuti: "Maganizo, zinali zovuta kwambiri kuti ndisiye. - Pamene simukufanana ndi wina aliyense, mumagwiritsa ntchito bonasi wachifundo: musayime mizere, kuvomerezana nanu, nthawi zonse amachiphonya. Ndinali ndi mwamuna yemwe adaphunzira maphunziro ambiri pambuyo pake. Iye anati: "Sindikudziwa momwe ndingakhalire ndi moyo ngati ndikupeza bwino." Lamulo loyambirira lokhalanso ndikutaya mtima. Amati kwa inu: muli ndi chinachake, ndipo inu-musakhulupirire. Ngati munthu akumva bwino ndikupita kwa dokotala, amayamba kukhala wogonjera. Kuphatikizana ndikugwirizana ndi matenda ake. Ndipo ndikofunikira kuchita, kuyesetsa chinachake, kukhala ndi cholinga pamoyo. Ku Western Ukraine pali mwamuna yemwe amachitira khansa ndi mantha. Kwa iye amabweretsa odwala opanda chiyembekezo. Amatumiza achibale, ndipo iye mwiniyo amachititsa kuti wodwalayo abwerere pa njinga yamoto n'kupita kumtunda kukwera.
Poyambirira amapita mwakachetechete, koma nthawi ina njinga yamoto imasonkhanitsa liwiro ndi kuthamangira kuphompho. Wokwerayo amadziwa kuti adzasweka pakalipano, kumamatira kwa dalaivala (nthiti zake zidathyoledwa mobwerezabwereza pambuyo pa kugwidwa kwa odwala). Yachiwiri isanafe imfa, munthu amaiwala chirichonse, ndipo amasinthasintha zonse pamoyo wake, amazindikira kufunika kwake. Ndiye zikutanthawuza kuti palibe malo amtsogolo, koma masomphenya a dziko amasintha mu masekondi ochepa awa. Pambuyo pake, wodwala alibe cholinga, safuna chilichonse ndikufa cha kutopa ndi kusowa mtendere. Koma panthawi yogwirizana kwenikweni ndi imfa, ludzu la moyo limabwerera kwa iye. Njira imeneyi imathandiza pafupifupi aliyense. "
Nthawi yomaliza Rivil anatenga mayeso khumi zaka zapitazo - popeza sanapite kuchipatala. Iye alibe chidwi ndi izi. Iye amawoneka bwino ndipo akunena kuti moyo wake utatha matenda wakhala wosangalatsa komanso wosangalala kwambiri. Inde! Posachedwapa adakumana ndi chikondi chenicheni - mwamuna wake wamwamuna, Igor. Mwana wamkazi wa Rivilville mwachinsinsi kuchokera kwa amayi ake adalemba pa chibwenzi chake. Poyambirira, mndandanda wa olembapo omwe anadziwana nawo anali oposa 900, pang'onopang'ono chiŵerengero cha ofunsidwa chinachepetsedwa kukhala atatu. Pa chithunzi Igor anaonekera kwa Rivil wamng'ono kwambiri, koma ndibwino kwambiri. Anaganiza kuti adziŵe naye, kuti amutumize mwanayo. Koma, atakumana, sanalekanenso. Igor anatsegula dziko la ayurveda. Anasinthanitsa ndi zakudya zamasamba, anakana tiyi ndi khofi, ndipo anayamba chidwi kwambiri ndi filosofi ya Kum'maŵa atapita ku India. Igor ndi Rivil ali ngati anthu amalingaliro. Palimodzi akugwira ntchitoyi "The Fairy Tale House" kwa odwala khansa, kugwira ntchito limodzi mu masewera a ana, kusangalala moyo pamodzi ndikupeza mbali zatsopano ndi kuthandizana wina ndi mzake.
"Monga lamulo, akudwala, anthu amadzizunza okha ndi funso: chifukwa chiyani? Rivil amaganiza. - Koma anthu ochepa okha akufunsa: chifukwa chiyani? Ndinayankha ndekha: ngati sindinadwale, kugwirizanitsa m'maganizo mwanga sikukanachitika, ndipo sindingathe kuthandiza anthu ambiri. Ndinakhala m'galimoto musanatenge matenda, ndipo kenako ndinafika kunyumba yachifumu. Ndinazindikira kuti thupi la munthu liri ndi mphamvu zambiri, muyenera kungozitsegula nokha. "